Wednesday, April 23, 2008

EE's in remission!!!

We received Taylor's biopsy results today from her EGD and I was excited to tears. I'm sure that sounds dramatic, but seriously, the last two years of eating challenges, failure to thrive, medications, throw ups, rashes, etc have been a big bummer--at the very least!

Her doctor was thrilled to report to me that Taylor is completely 100% healed internally. From her esophogus all the way to the top of her small intestine. The results yielded not a single sign of EE nor reflux nor irritations from food allergies. Healed, doesn't mean she won't ever be bothered with it again. Although, she's so young that he's optimistic that keeping her totally away from those foods for the first two years really gave her a great jump on that and she might never see flare ups. Time will tell.....but we're going with healed ;)

So, what does this mean? This means that the foods she's been eating (veggies, rice, beans, fruit and potatoes) are not harming her. This means that her allergist can start food experiments with her. They will introduce one new food every ten days, like you do with a baby. Taylor's allergies are questionable. She has a 'true' allergy to dairy. She had positive skin tests and negative blood tests to wheat, soy, eggs, berries, tree nuts, peanuts, meat proteins. So...they will probably do another set of both tests and see how they turn out. It's possible she's outgrown them, and also a lot of times w/ positive skin but negative blood that is a reaction caused by the EE. EE makes your system react strangely to most the simple staples that we take for granted.

We will see the allergist on Monday and the GI is turning all of the food experimentations over to him now. They do not have to confer on that anymore. He said if she was thriving and gaining weight he would start weining her off her medications as well. But since she's not, he's going to keep her on them for awhile longer. However, since her REFLUX is also HEALED (that's right, that's healed too), she really doesn't need them. Her thyroid is in good shape and the other enzymes that could possibly cause a failure to thrive are all good counts.

So the next question he asked me was have I had her tonsils checked. I told him about her surgery next month and he was thrilled to hear that. He said she has "abnormally large tonsils". Which, verbatim, is what the ENT said last week. And they both told me that a lot of times if there are not GI problems causing weight gain issues that it could be caused by tonsils. Glad those babies are comin' out! The ENT didn't want me to "bank on that" because of all her other issues. Although now that those seem to be summing up, maybe that really could be the reason?

Needless to say, we go to the allergist on Monday and I can't wait to hear what he has to say about her trying new foods. We go back to the GI in June, after her surgery. If she's gaining weight, he's going to get her off her meds!

So...in all our crapiness lately, things really are starting to look up. My Dad looks GREAT...I'm ALMOST done with this "damn database" (which I've affectionately named it) and Taylor is on the road to expanding her pallette!

Exhaling in progress.....

5 comments:

PCox said...

wooooooo hoooooo! this is exciting news. so glad to hear it!!!!

Meghan said...

That's great news, I'm glad she won't have any issues with the EE and reflux. That poor girl, she's been poked and prodded so much in her 2 years. Maybe she'll be a Dr. one day!

Watson Family said...

That is so awesome! I know that it is probably harder on you than it is on her to see her go through all those tests. But with you being such a good Mommy and taking care of her you can finally see a positive outcome! YEAH!

harbfam00 said...

That is GREAT news!!!I am so excited for lil' Taylor. That is good news for you guys too.Hopefully your days of "Taylor can't have that" are numbered.Love you guys and think of you often.

AmberM said...

Bec, I am so glad to hear that things are going well for Tay, and Uncle Bill too! I hope you were serious about coming out this summer. I sure would love to see you, and would love to see the kids play together. Kiss everyone for me!!! (BTW -- super mom's really can make everything better, don't we?)